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Self-advocacy in Sweden - impact on identity and social relations
Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI), Wigforss-gruppen.ORCID-id: 0000-0003-2636-7452
Malmö University, Malmö, Sweden.
Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI), Wigforss-gruppen. Living with Disability Research Centre, La Trobe University, Melbourne, Australia.ORCID-id: 0000-0002-7519-6488
2015 (engelsk)Konferansepaper, Oral presentation with published abstract (Fagfellevurdert)
Abstract [en]

Aim: In recent years an increased number of adults with intellectual disability in Sweden have been organized in self-advocacy groups since they no longer accept the perceived subordinate role as a disabled person in society. The aim of this study was to gain an understanding of the importance of being a member in a self-advocacy group and what impact it had on the members' daily life, relationships, self-determination and identity.

Method: An interpretative approach was used to analyze data from interviews with 26 participants in four different groups. The semi-structured interviews were supplemented with eight interviews conducted with support workers, focus-group interviews, observations during meetings and document reviews.

Findings: The findings suggest that the participants' engagement in a self-advocacy group is meaningful in several but varies ways. An improved life-situation consisting of strengthened control in every-day life and increased self-confidence are of great importance, but equally important is the perceived possibility to help others and make a difference in their lives. Self-advocacy is primarily understood in terms of achieved independence and social connections within the group, but also as influencing outsiders' attitudes.

Conclusions: The self-advocacy movements indicate a significant change in society and are important for the target group as well as for shaping future support and treatment. 

sted, utgiver, år, opplag, sider
2015.
HSV kategori
Identifikatorer
URN: urn:nbn:se:hh:diva-29984OAI: oai:DiVA.org:hh-29984DiVA, id: diva2:878402
Konferanse
Making it real together: 50th annual ASID Conference, ASID , 2015, Melbourne, Australia
Tilgjengelig fra: 2015-12-09 Laget: 2015-12-09 Sist oppdatert: 2015-12-10bibliografisk kontrollert

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