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Young Adult Cancer Survivor's Experiences of Psychosocial Rehabilitation
Skåne University Hospital, Lund, Sweden.
Högskolan i Halmstad, Akademin för hälsa och välfärd, Centrum för forskning om välfärd, hälsa och idrott (CVHI). (Hälsoinnovationer för barns psykiska hälsa)ORCID-id: 0000-0002-3576-2393
2012 (engelsk)Inngår i: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Vol. 59, nr 6, Special Issue: SI, s. 1122-1122Artikkel i tidsskrift, Meeting abstract (Fagfellevurdert) Published
Abstract [en]

Purpose: The objective of this study was to establish innovation incentives based on young adult cancer survivor’s experiences of psychosocial rehabilitation following their treatment.

Methods: Eligibility for the study cohort included diagnosis and treatment for paediatric acute lymphoblastic leukemia in Sweden prior to age 15 years between 1985 and 1997 and survival for at least 10 years (n = 416). A brief questionnaire including both closed and open questions were sent out by mail to all eligible subjects still living in Sweden and with a valid address in the population register (n = 374). Responses (n = 213, 57%) were analysed by descriptive statistics and qualitative content analysis.

Results: Only a few of the survivors in the cohort had maintained contact with their paediatric oncology clinic (n = 30, 14%). However, continuation of regular clinical check-ups related to cancer treatment (n = 61, 28%) were more common. Of those who had no contact with health services, 61% were satisfied and 39% dissatisfied with the contact being terminated. A majority of survivors reported that they did not have experience of psychosocial rehabilitation focused on knowledge formation (58%), strategies for action (66%), or support (58%) to continue life the best way possible.

Conclusion: This study highlights the potential for innovative resources for psychosocial rehabilitation during adolescence and the importance of supporting children’s and young adult’s initiatives to re-establishing contact with health care related to psychosocial rehabilitation. The school nurse can play a significant role in communication of such resources due to their proximity to children’s daily life post treatment.

sted, utgiver, år, opplag, sider
Hoboken: John Wiley & Sons, 2012. Vol. 59, nr 6, Special Issue: SI, s. 1122-1122
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Identifikatorer
URN: urn:nbn:se:hh:diva-21290DOI: 10.1002/pbc.24295ISI: 000309754300645OAI: oai:DiVA.org:hh-21290DiVA, id: diva2:600338
Konferanse
44th Congress of the International Society of Paediatric Oncology (SIOP) 2012, Barbican Centre, London, United Kingdom, 5-8 October, 2012
Merknad

Abstract PS010

Tilgjengelig fra: 2013-01-24 Laget: 2013-01-24 Sist oppdatert: 2017-04-25bibliografisk kontrollert

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