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European Qualitative research project on Patient-preferred outcomes in Early Rheumatoid Arthritis (EQPERA): rationale, design and methods of a multinational, multicentre, multilingual, longitudinal qualitative study
Department of Rheumatology, University Hospitals Leuven, Leuven, Belgium & Skeletal Biology and Engineering Research Centre, Department of Development and Regeneration, KU Leuven–University of Leuven, Leuven, Belgium.
Halmstad University, School of Business, Engineering and Science, The Rydberg Laboratory for Applied Sciences (RLAS). Department of Clinical Sciences, Section of Rheumatology, Lund University, Lund, Sweden & Research and Development Centre, Spenshult, Halmstad, Sweden.ORCID iD: 0000-0002-8081-579X
Department of Rehabilitation Sciences, KU Leuven – University of Leuven, Leuven, Belgium.ORCID iD: 0000-0001-6771-2836
Halmstad University, School of Health and Welfare, Centre of Research on Welfare, Health and Sport (CVHI). (Hälsa och hållbar uppväxt)ORCID iD: 0000-0002-4341-660X
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2019 (English)In: BMJ Open, ISSN 2044-6055, E-ISSN 2044-6055, Vol. 9, no 3, article id e023606Article in journal (Refereed) Published
Abstract [en]

INTRODUCTION: Including the patient perspective is important to achieve optimal outcomes in the treatment of rheumatoid arthritis (RA). Ample qualitative studies exist on patient outcomes in RA. A Belgian study recently unravelled what matters most to patients throughout the overwhelming and rapidly evolving early stage of RA. The present study, European Qualitative research project on Patient-preferred outcomes in Early Rheumatoid Arthritis (EQPERA) was created to contribute to a more universal understanding of patient-preferred health and treatment outcomes by integrating the perspectives of patients with early RA from three European countries.

METHODS AND ANALYSIS: In EQPERA, a qualitative, explorative, longitudinal study will be implemented in The Netherlands and Sweden, parallel to the methods applied in the previously conducted Belgian study. In each country, a purposive sample of patients with early RA will be individually interviewed 3-6 months after start of the initial RA treatment and subsequently, the same participants will be invited to take part in a focus group 12-18 months after RA treatment initiation. Data collection and analysis will be independently conducted by the local research teams in their native language. A meta-analysis of the local findings will be performed to explore and describe similarities, differences and patterns across countries.

ETHICS AND DISSEMINATION: Ethics approval was granted by the responsible local ethics committees. EQPERA follows the recommendations of the Declaration of Helsinki. Two main papers are foreseen (apart from the data reporting on the local findings) for peer-reviewed publication.

© Author(s) (or their employer(s)) 2019.

Place, publisher, year, edition, pages
London, UK: BMJ Publishing Group Ltd, 2019. Vol. 9, no 3, article id e023606
Keywords [en]
longitudinal study, patient preference, qualitative research, rheumatoid arthritis
National Category
Nursing
Identifiers
URN: urn:nbn:se:hh:diva-39485DOI: 10.1136/bmjopen-2018-023606ISI: 000413181404498PubMedID: 30918031Scopus ID: 2-s2.0-85063639513OAI: oai:DiVA.org:hh-39485DiVA, id: diva2:1318245
Funder
Swedish Rheumatism AssociationRegion Skåne
Note

Funding: Bristol-Myers Squibb, Fonds voor Wetenschappelijk Reuma Onderzoek (fund for Scientific Rheumatism Research) (Belgium), & Southern Health Care Region (Sweden)

Available from: 2019-05-27 Created: 2019-05-27 Last updated: 2019-11-29Bibliographically approved

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Bremander, AnnLarsson, Ingrid

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