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Zabalegui,, AdelaidaORCID iD iconorcid.org/0000-0003-1205-3997
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Publications (3 of 3) Show all publications
Lethin, C., Renom-Guiteras, A., Zwakhalen, S., Soto-Martin, M., Saks, K., Zabalegui, A., . . . Karlsson, S. (2017). Psychological well-being over time among informal caregivers caring for persons with dementia living at home. Aging & Mental Health, 21(11), 1138-1146
Open this publication in new window or tab >>Psychological well-being over time among informal caregivers caring for persons with dementia living at home
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2017 (English)In: Aging & Mental Health, ISSN 1360-7863, E-ISSN 1364-6915, Vol. 21, no 11, p. 1138-1146Article in journal (Refereed) Published
Abstract [en]

Objectives: To investigate informal caregivers’ psychological well-being and predicted increase in psychological well-being, when caring for persons with dementia (PwDs) living at home, related to caregiver, PwD and formal care (FC) factors.

Method: A cohort study at baseline and 3 months’ follow-up in eight European countries. Caregivers included (n = 1223) were caring for PwDs aged ≥ 65 years at home. Data on caregivers, PwDs and FC were collected using standardized instruments. Regression analysis of factors associated with caregiver psychological well-being at baseline and 3 months later was performed.

Results: Factors associated with caregiver psychological well-being at baseline were positive experience of caregiving, low caregiver burden, high quality of life (QoL) for caregivers, male gender of PwD, high QoL of PwD, few neuropsychiatric symptoms and depressive symptoms for the PwD. At follow-up, caregivers with increased psychological well-being experienced of quality of care (QoC) higher and were more often using dementia specific service. Predicting factors for caregivers’ increased psychological well-being were less caregiver burden, positive experience of caregiving, less supervision of the PwD and higher caregiver QoL, if PwD were male, had higher QoL and less neuropsychiatric symptoms. Furthermore, higher QoC predicted increased caregivers’ psychological well-being.

Conclusion: Informal caregiving for PwDs living at home is a complex task. Our study shows that caregivers’ psychological well-being was associated with, among other things, less caregiver burden and higher QoL. Professionals should be aware of PwD neuropsychiatric symptoms that might affect caregivers’ psychological well-being, and provide proper care and treatment for caregivers and PwDs. © 2016 Informa UK Limited, trading as Taylor & Francis Group

Place, publisher, year, edition, pages
Abingdon, Oxon: Routledge, 2017
Keywords
Dementia, caregivers, health professionals, home care services, adaptation, psychological
National Category
Nursing Nursing
Identifiers
urn:nbn:se:hh:diva-31595 (URN)10.1080/13607863.2016.1211621 (DOI)27463390 (PubMedID)2-s2.0-84979997852 (Scopus ID)
Funder
EU, FP7, Seventh Framework Programme, 242153
Available from: 2016-07-06 Created: 2016-07-06 Last updated: 2017-09-05Bibliographically approved
Cabrera, E., Sutcliffe, C., Verbeek, H., Saks, K., Soto-Martin, M., Meyer, G., . . . Zabalegui, A. (2015). Non-pharmacological interventions as a best practice strategy in people with dementia living in nursing homes: A systematic review. European Geriatric Medicine, 6(2), 134-150
Open this publication in new window or tab >>Non-pharmacological interventions as a best practice strategy in people with dementia living in nursing homes: A systematic review
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2015 (English)In: European Geriatric Medicine, ISSN 1878-7649, E-ISSN 1878-7657, Vol. 6, no 2, p. 134-150Article in journal (Refereed) Published
Abstract [en]

Background: Two-thirds of nursing home residents suffer from dementia and there is a need for effective and efficient interventions with meaningful outcomes for these individuals. This study aims to identify current best practices in non-pharmacological interventions in nursing homes.

Methods: A systematic literature review was conducted, following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) declaration guideline. Studies and Randomized Controlled Trials (RCT) evaluating non-pharmacological interventions focused on improving the Quality of Care (QoC) and/or Quality of Life (QoL) of people with dementia (PwD) living in nursing homes were included. For individual study evaluation, the Cochrane Collaboration risk of bias assessment tool was used.

Results: A total of 31 articles were included and five main categories emerged: psychosocial and educational, physical activity, sensorial therapies, staff-focused interventions and complex interventions. Psychosocial interventions were the most exhaustively studied and evaluated interventions. Few studies related to physical therapy were identified and they did not provide enough evidence of their effectiveness. Therapeutic touch was revealed to have positive effects on residents with dementia.

Conclusion: Psychosocial interventions have been shown to have the potential to improve the QoL and QoC of people with dementia in nursing homes. Before implementation of the intervention, it is recommended that activities are adjusted according to residents' characteristics and external factors controlled to achieve effectiveness and to structure a well-designed intervention. However, there is not enough evidence to support the effectiveness of non-pharmacological interventions in general. Further well-designed research is needed on non-pharmacological interventions in nursing facilities. (C) 2014 Elsevier Masson SAS and European Union Geriatric Medicine Society. All rights reserved.

Place, publisher, year, edition, pages
Oxford: , 2015
National Category
Nursing
Identifiers
urn:nbn:se:hh:diva-31586 (URN)10.1016/j.eurger.2014.06.003 (DOI)000351862500009 ()2-s2.0-84925594188 (Scopus ID)
Funder
EU, FP7, Seventh Framework Programme
Available from: 2016-07-06 Created: 2016-07-06 Last updated: 2017-11-28Bibliographically approved
Hallberg, I. R., Leino-Kilpi, H., Meyer, G., Raamat, K., Martin Soto, M., Sutcliffe, C., . . . Karlsson, S. (2013). Dementia care in eight European Countries: developing a mapping system to explore systems. Image - the Journal of Nursing Scholarship, 45(4), 412-424
Open this publication in new window or tab >>Dementia care in eight European Countries: developing a mapping system to explore systems
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2013 (English)In: Image - the Journal of Nursing Scholarship, ISSN 0743-5150, Vol. 45, no 4, p. 412-424Article in journal (Refereed) Published
Abstract [en]

Purpose: There is a knowledge gap with regard to the structure of the care and service system available to persons with dementia. This is very much a concern for nurses who are the main providers in the care of dementia. The study, a part of the "RightTimePlaceCare" project, describes the development and content of a mapping system aimed at exploring the content of care and service for persons with dementia and their informal caregiver throughout the disease trajectory. The usefulness of the mapping system is illustrated in describing the availability of care and service at the diagnostic stage, and at the institutional and palliative stages.

Design: A descriptive cross-country design concerning eight European countries differing in demographic composition and terms of long-term care provided is employed.

Methods: A modified consensus strategy was used to develop the mapping system and define the terminology. Thereafter, each country ' s mapping systemwas completed by its research group collecting country-specific information and using expert groups either as consultants or for completing the system.

Findings: The consensus procedure worked satisfactorily with regard to content and definitions, whereas assessing the availability and utilization of care and service was problematic. Some 50 types care and service activities were identified and defined and were categorized as follows: (a) screening, diagnostic procedures, and treatment of dementia; (b) outpatient care facilities; (c) care at home; (d) institutional care; (e) palliative care; (f) informal caregiving and supportive actions; and (g) civic activities. Care at home included the broadest range of activities; palliative care, informal caregiving, and supportive actions were the smallest range.

Conclusions: The dementia care systems were found to be comprehensive and to emphasize home care. Activities aimed at transferring knowledge to informal caregivers, though highly important for home care, seemed less extensive. The mapping system appears useful from a nurse manager's standpoint for exploring the dementia care pathway. Comparisons between countries appear useful for developing the care system and for sharing information of how toperfect it. Further testing and development are needed regarding information on the availability and utilization of care and service activities.

Clinical Relevance: The mapping system can be useful in clarifying the dementia care system for those concerned, in helping nurse researchers and managers review and initiate evaluation and communicate with policy makers, as well as to ensure that providers use appropriate parts of the system. It can also be useful in national and international comparative studies. © 2013 Sigma Theta Tau International.

Place, publisher, year, edition, pages
Oxford: Elsevier, 2013
Keywords
Dementia health care system, long term care, home care, mapping the system, cross-country research
National Category
Nursing
Identifiers
urn:nbn:se:hh:diva-31577 (URN)10.1111/jnu.12046 (DOI)000330239300012 ()24024758 (PubMedID)2-s2.0-84890129082 (Scopus ID)
Funder
EU, FP7, Seventh Framework Programme, 242153
Available from: 2016-07-06 Created: 2016-07-06 Last updated: 2017-11-28Bibliographically approved
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0003-1205-3997

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