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Taubner, H., Hallén, M. & Wengelin, Å. (2020). Still the same? – Self-identity dilemmas when living with post-stroke aphasia in a digitalised society. Aphasiology, 34(3), 300-318
Open this publication in new window or tab >>Still the same? – Self-identity dilemmas when living with post-stroke aphasia in a digitalised society
2020 (English)In: Aphasiology, ISSN 0268-7038, E-ISSN 1464-5041, Vol. 34, no 3, p. 300-318Article in journal (Refereed) Published
Abstract [en]

Background: Self-identity construction through “stories of self” is highly relevant for people with aphasia, not only because the onset entails a “biographical disruption” but also since their ability to keep their “stories of self” going is reduced. Three dilemmas (constancy/change, sameness/difference and agency/dependency) are known to be central to identity. In a digitalised society like Sweden, self-identity construction, including the navigation of these dilemmas, takes place both online and offline. Nevertheless, research combining aphasia, identity and online issues is scarce.

Aim: This qualitative study aims, in terms identity dilemmas, to investigate self-identity construction in working-age persons living with post-stroke aphasia in a digitalised society (i.e. Sweden). Are the dilemmas relevant to the participants, and if so, how do they navigate them online and offline?

Methods and Procedures: Nine individuals (three men and six women, aged 24–54 at onset) with mild or moderate post-stroke aphasia participated. The data comprises nine individual audio-recorded interviews and 1,581 screenshots from online observations. Qualitative analyses were performed (vertically and horizontally), combining inductive and deductive approaches.

Outcomes and Results: All three dilemmas are relevant to the participants. They construct their self-identity as both the same as they were pre-stroke and changed. They are both the same and different in relation to other stroke survivors (with or without aphasia), i.e. both “disabled” and “normal”. They display both dependency and agency. Thus, they navigate the dilemmas by constantly negotiating what to include in their stories of self. In addition, telling one story of self offline does not imply telling the same story online.

Conclusion: The dilemmas are intertwined and highly relevant to the participants. Offline and online settings evoke different ways for them to navigate the dilemmas. Increased awareness of the possible struggle with self-identity dilemmas in people with aphasia, and the possible difference between their online and offline self-identities, should be of value to family members, clinicians and researchers. Further research based on a larger sample is suggested. © 2019 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.

Place, publisher, year, edition, pages
Abingdon: Routledge, 2020
Keywords
Aphasia, stroke, self-identity, dilemmas, netnography
National Category
Social Psychology Other Health Sciences General Language Studies and Linguistics
Identifiers
urn:nbn:se:hh:diva-39173 (URN)10.1080/02687038.2019.1594151 (DOI)000463452900001 ()2-s2.0-85063255356 (Scopus ID)
Available from: 2019-03-25 Created: 2019-03-25 Last updated: 2020-02-27Bibliographically approved
Liljeqvist, M., Kling, S., Hallén, M. & Jormfeldt, H. (2020). Swedish Mental Health Nurses’ Experiences of Portrayals of Mental Illness in Public Media. Issues in Mental Health Nursing, 41(4), 348-354
Open this publication in new window or tab >>Swedish Mental Health Nurses’ Experiences of Portrayals of Mental Illness in Public Media
2020 (English)In: Issues in Mental Health Nursing, ISSN 0161-2840, E-ISSN 1096-4673, Vol. 41, no 4, p. 348-354Article in journal (Refereed) Published
Abstract [en]

News reporting about mental illness lack perspectives of the mentally ill themselves and it is almost exclusively psychiatrists who are accessed when healthcare staff is consulted. The perspective of mental health nurses might contribute to the public understanding of mental illness. The purpose of this study was to describe mental health nurses’ experiences of how mental illness is portrayed in media. Eight semi-structured interviews were conducted with qualified mental health nurses. A qualitative content analysis resulted in three categories: Negative portrayals of mental illness, Inconclusive images of mental illness and Biased dissemination of different perspectives. The conclusion of this study is that mental health nurses experience media portrayals of mental illness as negative and misleading with too much emphasis on the medical perspective while a holistic mental health nursing perspective is heavily obscured. Mental health nurses need to take a more prominent role in public reporting on mental health to resolve the current lack of relevant facts regarding mental illness. Further research is needed regarding portrayals of mental illness in social media and how the current lack of perspectives affects public perceptions of mental illness. In addition, further studies regarding the viewpoints of journalists reporting on mental illness are required. © 2019, © 2019 The Author(s). Published with license by Taylor & Francis Group, LLC.

Place, publisher, year, edition, pages
Philadelphia, PA: Taylor & Francis, 2020
National Category
Nursing
Identifiers
urn:nbn:se:hh:diva-41069 (URN)10.1080/01612840.2019.1658244 (DOI)000498445800001 ()31765236 (PubMedID)2-s2.0-85075417934 (Scopus ID)
Available from: 2019-12-02 Created: 2019-12-02 Last updated: 2020-03-31Bibliographically approved
Taubner, H., Hallén, M. & Wengelin, Å. (2017). Signs of aphasia: Online identity and stigma management in post-stroke aphasia. Cyberpsychology : Journal of Psychosocial Research on Cyberspace, 11(1)
Open this publication in new window or tab >>Signs of aphasia: Online identity and stigma management in post-stroke aphasia
2017 (English)In: Cyberpsychology : Journal of Psychosocial Research on Cyberspace, ISSN 1802-7962, E-ISSN 1802-7962, Vol. 11, no 1Article in journal (Refereed) Published
Abstract [en]

This study aimed to investigate online strategies for re-negotiating identity, in terms of stigma management, developed by working-age Swedish Internet users with post-stroke aphasia, i.e., acquired language impairment caused by brain injury. Interviews were conducted with nine individuals (aged 26-61, three men and six women) with post-stroke aphasia. In addition, a total of 1,581 screenshots of online posts (e.g., photos, videos, text, emoticons) created by the same participants were collected. Drawing on social semiotics (specifically the three dimensions of online communication mentioned by Kress (2003), i.e., composition, content and context) and Goffman’s theory of stigma (1963, specifically the concepts of stigma management and passing), qualitative thematic analysis was performed. Regarding composition, three themes emerged: Relying on others or technology, Beyond speaking and writing, and Controlling speed and timing. The participants rarely posted content about aphasia, but some of them used the Internet to raise awareness. Different online contexts had different meaning to the participants in terms of identity. Being open about the aphasia in one forum did not imply the same behaviour in another forum (e.g., dating sites). For the participants to pass (Goffman, 1963), should they want to, they needed to control all three dimensions. If the context or the composition revealed the stigma, controlling the content was not enough to pass. The multimodality of the Internet enabled the participants to manage their stigma in a variety of ways and to choose whether to be perceived as persons with aphasia or not. © 2017, Masaryk University. All rights reserved.

Place, publisher, year, edition, pages
Brno: Masarykova Univerzita, 2017
Keywords
aphasia, identity, stigma, online communication, disability, afasi, identitet, stigma, digitalt medierad kommunikation, funktionshinder
National Category
Communication Studies Social Sciences Interdisciplinary Other Social Sciences not elsewhere specified
Identifiers
urn:nbn:se:hh:diva-34010 (URN)10.5817/CP2017-1-10 (DOI)000404363200009 ()2-s2.0-85020440623 (Scopus ID)
Available from: 2017-06-19 Created: 2017-06-19 Last updated: 2019-11-01Bibliographically approved
Hallén, M. & Jormfeldt, H. (2016). Covering Mental Illness – Journalistic Views and Perspectives on Scientific Uncertainty and Social Stigma in News Media. In: ECREA 2016 Abstract Book: . Paper presented at ECREA’s 6th European Communication Conference, ‘Mediated (Dis)Continuities: Contesting Pasts, Presents and Futures’, Prague, Czech Republic, 9-12 November, 2016 (pp. 573-573). Prague: Czech-In
Open this publication in new window or tab >>Covering Mental Illness – Journalistic Views and Perspectives on Scientific Uncertainty and Social Stigma in News Media
2016 (English)In: ECREA 2016 Abstract Book, Prague: Czech-In , 2016, p. 573-573Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

The news media are one of the most important public sources of information on psychiatric disorders. However, research on news media content has established that journalistic coverage of mental illness is largely characterized by inaccuracies, exaggerations, and misinformation. Studies consistently show that both entertainment and news media provide overwhelmingly dramatic and distorted images of mental illness that emphasize dangerousness, criminality and unpredictability. According to previous research, newspapers might even contribute to mental illness stigma through negative news content. For example, insufficient stories on recovery may promote the belief that mental illness cannot be treated effectively. Also, news media can contribute to the maintaining of mental illness stigma by negative portrayals of individuals with these illnesses, making them vulnerable to social rejection and discrimination. Research on journalistic coverage of mental illness has also problematized the tendency to use incorrect or inappropriate language, thus devaluing the degree of scientific accuracy (for example, the incorrect or careless use of psychiatric terms). There is also a significant tendency to overestimate the explanatory value of genetics regarding the causes of mental illnesses and methods of treatment. There is a need for more research on how news about mental illness is produced, for example, what resources reporters use in covering stories and how reporters select, frame, and develop stories. Further, little information exists on how journalists overcome barriers to quality health reporting, for example, lack of time, lack of space, and commercialism. This paper analyzes journalistic views and perspectives regarding mental illness and the news media coverage of issues regarding mental illness. In particular, challenges in reporting scientific issues such as causes of mental disorders and their treatments will be focused. This study is based on qualitative semi-structured interviews with 8 journalists from Swedish metropolitan newspapers. The interview protocol served the function of “wide” questions for the purposes of allowing respondents to generate their own key terms. The journalists were chosen based on a newspaper article database search (focusing mental health issues), and the most frequent journalists in the article sample were contacted by email. The interviews were conducted by phone between February and March 2016 and were audio recorded. The journalists interviewed were initially asked to reflect upon different issues regarding mental illness; possible causes, different diagnosis, chances of recovery etc. Thereafter the interview focused the journalists view on media coverage of mental illness with special focus on news media, eg perspectives/bias in the journalistic representations, absent theories/approaches, choice of sources, strategies for research, journalistic work routines and procedures, most difficult challenges and journalistic responsibilities. Finally, they were asked to reflect upon possible changes in public attitudes and opinions regarding mental illness over the last few decades and the potential role of the news media in such a development.

Place, publisher, year, edition, pages
Prague: Czech-In, 2016
National Category
Media and Communications
Identifiers
urn:nbn:se:hh:diva-31927 (URN)978-80-906655-0-7 (ISBN)
Conference
ECREA’s 6th European Communication Conference, ‘Mediated (Dis)Continuities: Contesting Pasts, Presents and Futures’, Prague, Czech Republic, 9-12 November, 2016
Note

Abstract no: PP 392

Available from: 2016-09-05 Created: 2016-09-05 Last updated: 2016-12-01Bibliographically approved
Jormfeldt, H. & Hallén, M. (2016). Experiences of housing support in everyday life for persons with schizophrenia and the role of the media from a societal perspective. International Journal of Qualitative Studies on Health and Well-being, 11, Article ID 30571.
Open this publication in new window or tab >>Experiences of housing support in everyday life for persons with schizophrenia and the role of the media from a societal perspective
2016 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 11, article id 30571Article in journal (Refereed) Published
Abstract [en]

Background: The mental health-care system in Sweden, as in many other counties, has its main focus on the reduction of psychiatric symptoms and the prevention of relapses. People diagnosed with schizophrenia often have significant health issues and experience reduced well-being in everyday life. The social imaginary of mental illness as an imbalance of the brain has implications concerning general attitudes in society. The news media are an important source of information on psychiatric disorders and have an important role in cultivating public perceptions and stigma. News media can contribute to the mental illness stigma and place individuals with mental illnesses at risk of not receiving adequate care and support.

The aim of this preliminary study was to describe users’ experiences of housing support in everyday life.

Results: The results revealed three themes of housing support, which were needed, but frequently insufficiently fulfilled in the municipality. The three themes were: ‘‘Support to Practice Healthy Routines in Daily Life,’’ ‘‘Support to Shape Meaningful Contents in Everyday Life,’’ and ‘‘Support to Meet Needs of Integrity and Respect.’’

Conclusions: The findings support previous studies arguing that current health care and housing support fails to meet basic needs and may lead to significant and unnecessary health risks. Further investigation is needed regarding the links between attitudes to mental illness in society and political and financial principles for health care and housing support for persons with schizophrenia. Further research is needed regarding the role of the media in policymaking concerning health promotion interventions for people diagnosed with schizophrenia. © 2016 H. Jormfeldt & M. Hallén.

Place, publisher, year, edition, pages
Järfälla: Co-Action Publishing, 2016
Keywords
Housing support, media, narratives, persons diagnosed with schizophrenia, social sciences
National Category
Media and Communications Nursing
Identifiers
urn:nbn:se:hh:diva-30941 (URN)10.3402/qhw.v11.30571 (DOI)000396163000001 ()27167557 (PubMedID)2-s2.0-84982728741 (Scopus ID)
Available from: 2016-05-24 Created: 2016-05-24 Last updated: 2017-11-30Bibliographically approved
Sundin, E., Andersson, L., Hallén, M. & Danielsson, M. (2016). Local Images of Health and Lifestyle: Free Newspapers, Community-construction and the “Healthy City”. In: : . Paper presented at ECREA Pre-Conference: Dealing with the Local: Proximity and Community, Prague, Czech Republic, November 8, 2016.
Open this publication in new window or tab >>Local Images of Health and Lifestyle: Free Newspapers, Community-construction and the “Healthy City”
2016 (English)Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

Local free newspapers and magazines have become an integrated part of urban life. They are no longer restricted to large cities and in an age of declining readership in traditional press, these publications are sometimes the only outlet that reaches the general population. This makes them interesting both in terms of media economy (the hyper-local as the only viable business model for print journalism), and in terms of the construction of community. Still, they are often an overlooked phenomenon in media and communication studies.

This paper takes its departure from the project “Healthy Cities”, a movement developed by WHO with the purpose to include health-related issues in the political, economic and social agenda. In this movement, WHO acknowledges media’s role for promoting health images from a local perspective. The paper will contribute to the research field of local media’s role for their audiences in terms of shaping ideas of being part of ”the good life”. From this perspective, media have an important function in individuals’ sense of belonging and well-being.

In recent years, the local media landscape in Sweden has changed. The mainstream journalism has been somewhat reduced, due to financial cutbacks. In the same time, there is a new pattern of free local newspapers and magazines, distributed within communities, and with clear ambitions to promote “the good life” within the geographical range of distribution. Since changes of mainstream media have weakened the traditional concept of media closeness, it is of importance to study the new and innovative media paths to connect individuals within communities (e.g. smaller towns) in order to understand how these work for individuals’ sense of belonging and especially related to issues of health, lifestyles and well-being.

In this paper we would like to take the opportunity to share the outlines for a research project on local free-of-charge media in the Swedish town Halmstad, that is one of the 1400 European town and city members in the “Healthy City” project.

 We present some preliminary findings from four newspapers and magazines that are giving much attention to promote the image of “the good life” through articles about health, lifestyles and well-being.

 The research project is part of an initiative to chart contemporary urban town living through an interdisciplinary research program that uses a community studies approach, where the aim of the present study is to understand the role that the free newspapers (and similar media outlets) play in representing and making sense of notions such as “health”, “lifestyle” and ”well-being” in Halmstad.

National Category
Media and Communications
Identifiers
urn:nbn:se:hh:diva-32007 (URN)
Conference
ECREA Pre-Conference: Dealing with the Local: Proximity and Community, Prague, Czech Republic, November 8, 2016
Available from: 2016-09-14 Created: 2016-09-14 Last updated: 2017-03-06Bibliographically approved
Hallén, M. (2015). A forgotten genre? Research on media portrayal of mental illness – a meta review. In: : . Paper presented at NordMedia, Media Presence - Mobile Modernities 2015, Copenhagen, Denmark, 13-15 August, 2015.
Open this publication in new window or tab >>A forgotten genre? Research on media portrayal of mental illness – a meta review
2015 (English)Conference paper, Published paper (Refereed)
Abstract [en]

Relation to the relevant division:

The science documentary represents a special format for framing and portraying scientific knowledge. In relation to traditional news media, the science documentary is uniquely placed to offer the audience a perspective with depth, breadth and nuance. Despite this, rather little attention has been devoted to this media genre with regard to the area of mental illness.

Research question:

In what ways is the science documentary as a particular media genre represented and discussed when the research field of media portrayal of mental illness is framed and described?

Theoretical background

The meta review conducted has from a constructivist perspective attempted to investigate how the research field of media portrayal of mental illness is discussed and defined. Literature reviews present the research within a defined field, making visible different focuses and theoretical/methodological approaches and relating these to each other – the field is discursively “framed”.

Methodological approach

Narrative literature review

Analytical focus

To what extent are science documentaries stated and studied as a particular format for the presentation of issues related to mental illness?

Are there – based on the studies presented in the overviews – any crucial differences in the way of presenting mental illness? What characterizes the science documentaries as a framing for the thematic content in question?

National Category
Media and Communications
Identifiers
urn:nbn:se:hh:diva-28746 (URN)
Conference
NordMedia, Media Presence - Mobile Modernities 2015, Copenhagen, Denmark, 13-15 August, 2015
Available from: 2015-06-23 Created: 2015-06-23 Last updated: 2016-07-05Bibliographically approved
Hallén, M. (2015). Politikens medialisering: Medier som aktör och arena för politisk kommunikation. In: Hans Bengtsson (Ed.), Vinklade budskap: perspektiv på politisk kommunikation (pp. 87-103). Halmstad: Högskolan i Halmstad
Open this publication in new window or tab >>Politikens medialisering: Medier som aktör och arena för politisk kommunikation
2015 (Swedish)In: Vinklade budskap: perspektiv på politisk kommunikation / [ed] Hans Bengtsson, Halmstad: Högskolan i Halmstad , 2015, p. 87-103Chapter in book (Refereed)
Place, publisher, year, edition, pages
Halmstad: Högskolan i Halmstad, 2015
Series
Forskning i Halmstad, ISSN 1400-5409 ; 23
Keywords
politikens medialisering, samhällskommunikation, mediestruktur
National Category
Media and Communications
Identifiers
urn:nbn:se:hh:diva-28743 (URN)978-91-87045-23-3 (ISBN)978-91-87045-22-6 (ISBN)
Available from: 2015-06-23 Created: 2015-06-23 Last updated: 2016-07-05Bibliographically approved
Nilsson, M. (2009). Att förklara människan: Diskurser i populärvetenskapliga TV-program. (Doctoral dissertation). Lund: Media-Tryck, Lund University
Open this publication in new window or tab >>Att förklara människan: Diskurser i populärvetenskapliga TV-program
2009 (Swedish)Doctoral thesis, monograph (Other academic)
Abstract [en]

The principle aim of the study is to describe, analyze and problemize the ways in which television science documentaries (within a public service context) discursively represent scientific theories, research results and conclusions about the origins of human nature and the causes of human behavior. The study covers 25 programs broadcasted by SVT and UR during a period of four years,2002-2005 , and 12 additional programs are used as a basis for discussion. Most of the programs included in the study are productions purchased mainly from BBC Science. Thus, managing editors, producers and presenters were interviewed for the purpose of illuminating quality judgements and purchasing criteria. A five stage-model of critical discourse analysis has inspired the method which emphasizes the network of communicative practices in which the media text and representation are embedded. That includes media genre, production and narrative conventions as well as the wider historical, social and political/ideological context and discourse practices of which the issues represented are a part. The critical discourse analysis has been complemented by ideas about different documentary modes of representation or basic ways of organizing documentary texts in relation to certain recurrent features or conventions. In the analysis these modes have been applied to understand the degree of transparency and editorial presence and visibility in the science documentaries. The importance of the discourses presented is related to their more applied meanings. When certain descriptions, explanations and understandings of alleged human “basics” gain priority, it may affect the possibilities to define and handle very concrete social issues in a way that is inconsistent with this fundamental perspective. Thus, the ideological function of the science documentaries (as public service-program and educational media) deserves serious attention.

Place, publisher, year, edition, pages
Lund: Media-Tryck, Lund University, 2009. p. 252
Series
Lund studies in media and communication, ISSN 1104-4330 ; 11
Keywords
human behavior, public service broadcasting, human nature, popular science, science documentaries, science on television, media analysis, discourse analysis, science and the media
National Category
Media and Communications
Identifiers
urn:nbn:se:hh:diva-5422 (URN)978-91-7267-296-3 (ISBN)
Public defence
, Lund (Swedish)
Opponent
Supervisors
Available from: 2010-08-25 Created: 2010-08-25 Last updated: 2018-03-23Bibliographically approved
Nilsson, M. (2004). Mediernas makt över tanken. In: Lars Nord & Jesper Strömbäck (Ed.), Medierna och demokratin: (pp. 343-366). Lund: Studentlitteratur
Open this publication in new window or tab >>Mediernas makt över tanken
2004 (Swedish)In: Medierna och demokratin / [ed] Lars Nord & Jesper Strömbäck, Lund: Studentlitteratur, 2004, p. 343-366Chapter in book (Other academic)
Place, publisher, year, edition, pages
Lund: Studentlitteratur, 2004
National Category
Social Sciences
Identifiers
urn:nbn:se:hh:diva-22316 (URN)91-44-03037-1 (ISBN)978-91-44-03037-1 (ISBN)
Available from: 2013-05-24 Created: 2013-05-24 Last updated: 2018-03-22Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0003-3084-9593

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