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Svedberg, P., Arvidsson, S., Larsson, I., Carlsson, I.-M. & Nygren, J. M. (2019). Barriers and Enablers Affecting Successful Implementation of the Electronic Health Service Sisom: Multicenter Study of Child Participation in Pediatric Care. Journal of Medical Internet Research, 21(11), 1-15, Article ID 14271.
Open this publication in new window or tab >>Barriers and Enablers Affecting Successful Implementation of the Electronic Health Service Sisom: Multicenter Study of Child Participation in Pediatric Care
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2019 (English)In: Journal of Medical Internet Research, ISSN 1438-8871, E-ISSN 1438-8871, Vol. 21, no 11, p. 1-15, article id 14271Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Children's participation in health care is one of the most important components in the management of their disease. Electronic health (eHealth) services that are adapted to the needs of children have the potential for restructuring how children and professionals work together. Therefore, a digital interactive assessment and communication tool, Sisom, was developed to give children aged between 6 and 12 years a voice in their own health care. However, the implementation of eHealth services such as Sisom in daily practice in pediatric health care is rarely investigated. OBJECTIVE: The aim of this study was to explore the process of implementing Sisom for children in pediatric care in Sweden. More specifically, the study aimed to (1) evaluate whether the implementation strategy was conducted as planned, (2) understand the barriers and facilitators of the implementation strategy in pediatric care settings, (3) gain insight into how professionals work with the specific intervention, and (4) gain insight into the usefulness and effects of the intervention from the professionals' perspectives. METHODS: A process evaluation design was used to study the implementation of Sisom at 4 pediatric care centers in Sweden. An extensive amount of qualitative and quantitative data was collected before, during, and after the intervention through self-report checklists, memos, and interviews with professionals. In total, 46 children, aged between 6 and 13 years, participated. The children used Sisom on two occasions during 6 months. When they used Sisom, a printed report formed the basis for a forthcoming dialogue between professionals, children, and their parents. RESULTS: To our knowledge, this is the first implementation study of an eHealth communication tool aimed at strengthening children's participation in pediatric health care. Key factors for successful implementation were alignment of the solution with the values and goals of the organization, health care professionals' beliefs in the usefulness and usability of the solution, and health care professionals' willingness to change their professional roles guided by the solution. CONCLUSIONS: The results from the study show that it is possible to restructure health care delivery toward a child-centered approach, if there is a willingness and preparedness in the organization to implement an eHealth solution with the aim of restructuring the way of working with children's participation. ©Petra Svedberg, Susann Arvidsson, Ingrid Larsson, Ing-Marie Carlsson, Jens M Nygren.

Place, publisher, year, edition, pages
Toronto: JMIR Publications, Inc., 2019
Keywords
children, eHealth, health care, quality improvement, diffusion of innovation, implementation science
National Category
Nursing Pediatrics Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
urn:nbn:se:hh:diva-41026 (URN)10.2196/14271 (DOI)000452782500038 ()30533057 (PubMedID)2-s2.0-85074656706 (Scopus ID)
Available from: 2019-11-24 Created: 2019-11-24 Last updated: 2019-11-25Bibliographically approved
Svedberg, P., Arvidsson, S., Larsson, I., Carlsson, I.-M. & Nygren, J. M. (2019). Barriers And Enablers for Successful Implementation of the eHealth Service Sisom for Improved Child Participation in Paediatric Care - A Multi-Centre Study. Paper presented at 51th Congress of the International Society of Paediatric Oncology (SIOP), Lyon, France, October 23-36, 2019. Pediatric Blood & Cancer, 66(S4), S112-S112
Open this publication in new window or tab >>Barriers And Enablers for Successful Implementation of the eHealth Service Sisom for Improved Child Participation in Paediatric Care - A Multi-Centre Study
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2019 In: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Pediatric blood and cancer, Vol. 66, no S4, p. S112-S112Article in journal (Refereed) Accepted
Place, publisher, year, edition, pages
Hoboken, NJ: John Wiley & Sons, 2019
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
urn:nbn:se:hh:diva-40803 (URN)000488458001098 ()
Conference
51th Congress of the International Society of Paediatric Oncology (SIOP), Lyon, France, October 23-36, 2019
Available from: 2019-10-28 Created: 2019-10-28 Last updated: 2019-10-31
Svedberg, P., Arvidsson, S., Larsson, I., Carlsson, I.-M. & Nygren, J. M. (2019). Barriers And Enablers for Successful Implementation of the eHealth Service Sisom for Improved Child Participation in Paediatric Care - A Multi-Centre Study. In: : . Paper presented at SIOP 2019.
Open this publication in new window or tab >>Barriers And Enablers for Successful Implementation of the eHealth Service Sisom for Improved Child Participation in Paediatric Care - A Multi-Centre Study
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2019 (English)Conference paper, Poster (with or without abstract) (Refereed)
Keywords
eHealth service, participation, child, healthcare
National Category
Nursing
Identifiers
urn:nbn:se:hh:diva-40828 (URN)
Conference
SIOP 2019
Available from: 2019-11-03 Created: 2019-11-03 Last updated: 2019-11-07
Arvidsson, S., Nylander, M. & Bergman, S. (2019). Callers´perceptions of their contact with a rheumatology telephone helpline. Musculoskeletal Care, 17(1), 105-112
Open this publication in new window or tab >>Callers´perceptions of their contact with a rheumatology telephone helpline
2019 (English)In: Musculoskeletal Care, ISSN 1478-2189, E-ISSN 1557-0681, Vol. 17, no 1, p. 105-112Article in journal (Refereed) Published
Abstract [en]

Background: Telephone helplines are useful for improving patients' access to healthcare services and reducing the need for frequent face‐to‐face contact with healthcare professionals. Little is known about how people who phone a helpline perceive the encounter.

Objectives: The aims of the present study were to describe the variation in how callers perceive their encounter with a rheumatology telephone helpline.

Methods: The  study  had  a  descriptive,  qualitative  design  and  used  a phenomenographic approach, comprising 27 semi‐structured telephone interviews with callers to Rheuma Direct, a rheumatology telephone helpline with specially trained nurses. The callers comprised 22 women and five men, aged 22–89 years (mean 54 years).

Results: The callers phoned Rheuma Direct when they had problems obtaining answers to questions on the internet or from healthcare professionals. Three descriptive categories emerged: constructive dialogue, specialized competence and applicability. The callers perceived that it was a constructive dialogue when they were able to discuss their concerns with someone, received emotional support, felt reassured and were satisfied with the information provided. They perceived specialized competence when the nurses were experienced and skilful, the advice provided complemented previously received information and when they had more knowledge after the call. The callers perceived that Rheuma Direct had applicability because it was easy to access and they could make different choices before, during and after the telephone call. 

Conclusions: Callers to a rheumatology telephone helpline perceived it as a valuable complement to other sources of information, and felt that it could provide them with the tools to manage their disease better, as well as future contacts with healthcare professionals. © 2018 The Authors Musculoskeletal Care published by John Wiley & Sons Ltd.

Place, publisher, year, edition, pages
Oxford: John Wiley & Sons, 2019
Keywords
nurse, qualitative research, rheumatology
National Category
Nursing
Identifiers
urn:nbn:se:hh:diva-38460 (URN)10.1002/msc.1374 (DOI)30468564 (PubMedID)2-s2.0-85057111450 (Scopus ID)
Note

Funding: Swedish Rheumatism Association (grant number: R‐558491) & Spenshult Research and Development Centre

Available from: 2018-11-30 Created: 2018-11-30 Last updated: 2019-03-29Bibliographically approved
Gilljam, B.-M., Arvidsson, S., Nygren, J. M. & Svedberg, P. (2019). Child participation in health care (ChiPaC)—Development and psychometric evaluation of a self‐report instrument for children's participation in health care. Journal of Clinical Nursing, 1-12
Open this publication in new window or tab >>Child participation in health care (ChiPaC)—Development and psychometric evaluation of a self‐report instrument for children's participation in health care
2019 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, p. 1-12Article in journal (Refereed) Epub ahead of print
Abstract [en]

Aims and objectives

To develop and evaluate the psychometric properties of a self‐report instrument measuring 6‐ to 12‐year‐old children's own experiences of participation in health care.

Background

Validated measures to evaluate children's participation in health care can play a critical role in strategic work towards supporting children's participation at an individual level and in working towards quality improvements at an organisational level. There are, however, no available instruments to achieve this.

Methods

An instrument development design was used, together with the TRIPOD checklist. Item construction was based on research about children's perspectives on participation in health care and Shier's model for participation. The face and content validity was evaluated by 14 healthy children, 9 paediatric nurses and 8 children with different diseases. The construct validity, internal consistency and stability reliability were evaluated based on data from 138 children visiting a paediatric clinic.

Results

The testing of the face and content validity resulted in an instrument with child‐friendly language, additional instructions and visual attractive presentation. The principle component analysis resulted in the four‐factor solution: “To be included,” “To trust professionals,” “To take control,” and “To understand information.” Internal consistency and intraclass correlation coefficients were acceptable.

Conclusion

We conclude that the child participation in health care (ChiPaC) instrument has adequate reliability and validity when used to evaluate children's participation in health care. The involvement of children in the development of ChiPaC resulted in a brief, colourful and user‐friendly instrument for use in paediatric health care.

Relevance to clinical practice

This new questionnaire, ChiPaC, is adapted for children between 6–12 years measuring participation in health care from a child perspective. ChiPaC can be used in the practical work of supporting individual children's participation in health care as well as in the strategical work towards quality improvements on an organisational level.

What does this paper contribute to the wider global clinical community?

  • The instrument provides a contribution for the practical implementation of the Convention on the Rights of the Child in health care.
  • The high degree of involvement of children in the development of the instrument resulted in a brief, colourful and user‐friendly instrument that can be used in paediatric health care.
  • The instrument can play a critical role in the practical work of supporting individual children's participation in health care as well as in the strategical work of quality improvement on an organisational level.
Place, publisher, year, edition, pages
Chichester: Wiley-Blackwell, 2019
Keywords
child, healthcare worker, instrument development, patient participation, questionnaire
National Category
Nursing
Identifiers
urn:nbn:se:hh:diva-40776 (URN)10.1111/jocn.15063 (DOI)31531995 (PubMedID)
Note

Funding: The Region Halland (grant number HALLAND‐631071), and the Linnéa and Josef Carlssons foundation (grant number 2016/12).

Available from: 2019-10-22 Created: 2019-10-22 Last updated: 2019-10-23
Arvidsson, S., Aili, K. & Nygren, J. M. (2019). Health-Related Quality of Life among Young Adult Acute Lymphoblastic Leukemia Survivors in Sweden. In: : . Paper presented at 51th Congress of the International Society of Paediatric Oncology (SIOP 2019), Lyon, France, October 23-26, 2019.
Open this publication in new window or tab >>Health-Related Quality of Life among Young Adult Acute Lymphoblastic Leukemia Survivors in Sweden
2019 (English)Conference paper, Poster (with or without abstract) (Refereed)
Keywords
ALL, health-related quality of life, survivors
National Category
Nursing
Identifiers
urn:nbn:se:hh:diva-40996 (URN)000488458003013 ()
Conference
51th Congress of the International Society of Paediatric Oncology (SIOP 2019), Lyon, France, October 23-26, 2019
Available from: 2019-11-20 Created: 2019-11-20 Last updated: 2019-11-20
Larsson, I., Svedberg, P., Arvidsson, S., Nygren, J. M. & Carlsson, I.-M. (2019). Parents’ experiences of an e-health intervention implemented in pediatric healthcare: a qualitative study. BMC Health Services Research, 19, Article ID 800.
Open this publication in new window or tab >>Parents’ experiences of an e-health intervention implemented in pediatric healthcare: a qualitative study
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2019 (English)In: BMC Health Services Research, ISSN 1472-6963, E-ISSN 1472-6963, Vol. 19, article id 800Article in journal (Refereed) Published
Abstract [en]

Background: The growing field of participation in healthcare has the potential to provide a number of benefits for children, patients, healthcare professionals and also the healthcare systems. According to the Convention on the Rights of the Child (UNCRC), children have the right to participate in their own healthcare and make their voice heard. Children’s opportunities for understanding their conditions, sharing their views and participating in decisions regarding their care depend on healthcare professionals but also on parents’ ability to communicate and include children. E-health solutions can remove barriers to children’s communication with healthcare professionals. The aim of this study was to explore parents’ perspectives on the outcomes of an e-health solution, Sisom, used by children during healthcare appointments.

Methods: The empirical data is based on interviews with 16 parents. In the present study constructivist, grounded theory was chosen as the method.

Results: The theory of enhancing participation, by orientating communication about healthcare towards the voice of the child instead of the parents, summarizes the process of how the outcome of Sisom for children lead to enhanced participation, by making the child the main actor and an agent in his/her own healthcare. The facilitators for achieving participation in Sisom were four interrelated outcomes; engaging, voice-guarding, raising awareness and integrity preserving. In addition to generating increased participation, it emerged that the use of Sisom also initiated a process, which was evident in all four subcategories that facilitated the child in coping with the experience of having an illness.

Conclusions: We conclude, that Sisom orientated communication about healthcare towards the voice of the child instead of the parents as well as including the child in the dialogue with the healthcare professional and thus increasing the child’s participation and human rights. © 2019 The Author(s)

Place, publisher, year, edition, pages
London, UK: BioMed Central, 2019
Keywords
Children, E-health intervention, Grounded theory, Parents, Participation
National Category
Other Health Sciences
Identifiers
urn:nbn:se:hh:diva-40879 (URN)10.1186/s12913-019-4643-7 (DOI)31690287 (PubMedID)2-s2.0-85074584965 (Scopus ID)
Funder
Swedish Childhood Cancer Foundation
Note

Other funder: Centre of Welfare, Health and Sports at Halmstad University.

Available from: 2019-11-08 Created: 2019-11-08 Last updated: 2019-11-29Bibliographically approved
Karlsson, S., Arvidsson, S., Cuesta, M., Millberg German, L. & Nilsson, C. (2018). HICube Kompetenta vården, Delrapport: Välfärdsteknik ur ett etiskt perspektiv, Varbergs kommun.
Open this publication in new window or tab >>HICube Kompetenta vården, Delrapport: Välfärdsteknik ur ett etiskt perspektiv, Varbergs kommun
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2018 (Swedish)Report (Other academic)
Publisher
p. 35
National Category
Other Health Sciences
Identifiers
urn:nbn:se:hh:diva-38081 (URN)
Projects
HICube Kompetenta vården
Funder
European Social Fund (ESF)
Available from: 2018-09-30 Created: 2018-09-30 Last updated: 2018-10-02Bibliographically approved
Arvidsson, S., Nylander, M. & Bergman, S. (2017). People's perceptions of their phone call with rheuma directly, a rheumatic diseases helpline. Paper presented at EULAR (European Leauge against Rheumatism) Annual European Congress of Rheumatology, Madrid, Spain, 14–17 June, 2017. Annals of the Rheumatic Diseases, 76(Suppl. 2), 1544-1545, Article ID AB1238-HPR.
Open this publication in new window or tab >>People's perceptions of their phone call with rheuma directly, a rheumatic diseases helpline
2017 (English)In: Annals of the Rheumatic Diseases, ISSN 0003-4967, E-ISSN 1468-2060, Vol. 76, no Suppl. 2, p. 1544-1545, article id AB1238-HPRArticle in journal, Meeting abstract (Refereed) Published
Abstract [en]

Background Information on rheumatic diseases is often complex to understand or scary, and additional support is often necessary. Rheuma Directly (RD) is a helpline with specially trained nurses on rheumatic diseases, funded by the Swedish Rheumatism Association and Spenshult Research and Development Centre. Little is known of how people calling a helpline perceive the contact.

Objectives To describe the variation in how people perceive the contact with the helpline RD.

Methods The study had a descriptive, qualitative design with a phenomenographic approach and was carried out by means of 27 semi-structured telephone interviews. The informants were 22 female and 5 men, and their ages ranged from 22 to 89 years (mean 54 years).

Results The informants called RD when they had problems getting answers to their questions through the Internet or from healthcare professionals. Three different description categories emerged: Specific competence, Constructive dialogue, and Applicability. The informants' perceived Specific competence when the nurses were knowledgeable, the call was complementary to previously received information and when the informants had greater knowledge after the contact with RD. They perceived that it was a Constructive dialogue when they got someone to discuss with, a “sounding board”, and perceived emotional support, felt reassured and were satisfied with the answer. The informants perceived Applicability because RD was available and they could make different choices according to their own desire; before (how and when they would contact RD), during (what to tell and what question they would ask) and after (how and what they would do after the contact with RD).

Conclusions People calling RD perceived that the telephone call with the nurses meant meeting specific competence, gaining constructive dialogue and that the helpline was applicable. This knowledge ad to a fuller understanding of factors that from a caller's perspective, are important when calling a helpline with specially trained nurses on rheumatic diseases. © 2017, Published by the BMJ Publishing Group Limited.

Place, publisher, year, edition, pages
London: BMJ Publishing Group Ltd, 2017
Keywords
helpline, nurse, phenomenographic, rheumatic diseases
National Category
Nursing
Identifiers
urn:nbn:se:hh:diva-34724 (URN)10.1136/annrheumdis-2017-eular.2466 (DOI)000413181404651 ()
Conference
EULAR (European Leauge against Rheumatism) Annual European Congress of Rheumatology, Madrid, Spain, 14–17 June, 2017
Funder
Swedish Rheumatism Association, R-558491
Available from: 2017-08-15 Created: 2017-08-15 Last updated: 2017-11-29Bibliographically approved
Nylander, M. & Arvidsson, S. (2017). Ring & Fråga Reuma Direkt! – Vilket behov fyller frågelinjen?. In: : . Paper presented at Reumadagarna 2017, 13-15 september, Västerås, Sverige.
Open this publication in new window or tab >>Ring & Fråga Reuma Direkt! – Vilket behov fyller frågelinjen?
2017 (English)Conference paper, Oral presentation only (Other academic)
Keywords
Helpline, nurse, phenomenographic, rheumatic diseases
National Category
Nursing
Identifiers
urn:nbn:se:hh:diva-34999 (URN)
Conference
Reumadagarna 2017, 13-15 september, Västerås, Sverige
Funder
Swedish Rheumatism Association, R-558491
Available from: 2017-09-18 Created: 2017-09-18 Last updated: 2017-09-22Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0001-5647-086X

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