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Vinblad, E., Svedberg, P., Nygren, J. M., Lönn, M., Olsson, E. & Larsson, I. (2019). Children and young people’s experiences of participation in pediatric rehabilitation: a qualitative study. Paper presented at 31st Annual Meeting of the European Academy of Childhood Disability Conference (EACD), Paris, France, May 23-25, 2019. Developmental Medicine & Child Neurology, 61(S2)
Open this publication in new window or tab >>Children and young people’s experiences of participation in pediatric rehabilitation: a qualitative study
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2019 (English)In: Developmental Medicine & Child Neurology, ISSN 0012-1622, E-ISSN 1469-8749, Vol. 61, no S2Article in journal, Meeting abstract (Refereed) Published
Abstract [en]

Introduction: Creating a healthcare system of justice requires a child-centered care where children and young people, regardless of disability, are allowed to participate in their own rehabilitation. The aim of this study was to explore children and young people’s experiences of participation in pediatric rehabilitation.

Patients and methods: The study had a descriptive design with a qualitative content analysis approach. Interviews were conducted with 20 children (6-17 years old, 9 girls and 11 boys) and 8 young people (18-30 years old, 6 women and 2 men) with intellectual disabilities, physical disabilities or autism spectrum disorders.

Results: Three categories emerged that reflected children and young people’s experiences of participation in pediatric rehabilitation: to be included; to be empowered; and to feel supported. To be included meant that children and young people are respected, listened to and involved in shared decision-making. To be empowered comprised autonomy, responsibility and understanding as essential aspects for participation. To feel supported meant that children and young people described their parents as facilitators for enabling participation by supporting communication and being a bridge between child and professionals.

Conclusion: To increase participation, children need support in communication with the healthcare professionals in a way that they feel respected, empowered and able to be included in decisions concerning their own pediatric rehabilitation. This result constitutes an important step in the development of a forthcoming digital communication and decision tool, with the main objective to increase participation, for children with disabilities.

Place, publisher, year, edition, pages
Chichester: , 2019
Keywords
child, participation
National Category
Nursing
Identifiers
urn:nbn:se:hh:diva-39492 (URN)
Conference
31st Annual Meeting of the European Academy of Childhood Disability Conference (EACD), Paris, France, May 23-25, 2019
Note

Conference Poster

Available from: 2019-05-27 Created: 2019-05-27 Last updated: 2019-09-30Bibliographically approved
Teleman, B., Karsson, C., Svedberg, P., Vinblad, E., Larsson, I. & Nygren, J. M. (2019). Co-construction of child personas in the development of a digital communication support system for increased participation in pediatric habilitation. Paper presented at 31st Annual Meeting of the European Academy of Childhood Disability (EACD), Paris, France, May 23-25, 2019. Developmental Medicine & Child Neurology, 61(S2), 17-17
Open this publication in new window or tab >>Co-construction of child personas in the development of a digital communication support system for increased participation in pediatric habilitation
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2019 (English)In: Developmental Medicine & Child Neurology, ISSN 0012-1622, E-ISSN 1469-8749, Vol. 61, no S2, p. 17-17Article in journal, Meeting abstract (Refereed) Published
Abstract [en]

Introduction: Digital communication support systems have great potential to facilitate the provision of child-centered care where children and young people are allowed and enabled to participate in planning and decision-making in their own habilitation. The aim of this study was to co-construct child personas together with children and young adults from pediatric habilitation for the design of a digital communication support system.

Patients and methods: The child, parent and practitioner perspectives on goals, needs and behaviours in relation to participation in pediatric habilitation were characterized based on interviews with 20 children (6-17 years old) and 8 young people (18-30 years old) with intellectual disabilities, physical disabilities or autism spectrum disorders, 17 parents (aged 31-62 years) and 10 practitioners. Data were interpreted and explained together with children from the interviews (n=14) in two explorative design workshops and a validation workshop.

Results: We present findings and insights on how to co-construct child personas in the context of pediatric habilitation. The work resulted in three personas with different priorities that model the behaviors, attitudes, and goals of three user archetypes tailored for developing digital communication support systems in this particular use context.

Conclusion: By applying our progressive steps of data collection and analysis, we arrive at authentic child-personas that are now used to design and develop a digital communication support system for the particular goals, needs and behaviors of children in pediatric habilitation.

Place, publisher, year, edition, pages
Chichester: Wiley-Blackwell Publishing Inc., 2019
Keywords
Co-construction, digital communication tool, participation, personas
National Category
Nursing
Identifiers
urn:nbn:se:hh:diva-39493 (URN)10.1111/dmcn.14244 (DOI)
Conference
31st Annual Meeting of the European Academy of Childhood Disability (EACD), Paris, France, May 23-25, 2019
Note

Oral presentation 37

Available from: 2019-05-27 Created: 2019-05-27 Last updated: 2019-10-02Bibliographically approved
Ahlborg, M., Svedberg, P., Nyholm, M., Morgan, A. & Nygren, J. M. (2019). Into the realm of social capital for adolescents: A latent profile analysis. PLoS ONE, 14(2), Article ID e0212564.
Open this publication in new window or tab >>Into the realm of social capital for adolescents: A latent profile analysis
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2019 (English)In: PLoS ONE, ISSN 1932-6203, E-ISSN 1932-6203, Vol. 14, no 2, article id e0212564Article in journal (Refereed) Published
Abstract [en]

Background

Recent reports of increasing prevalence of frequent health complaints and mental health problems among adolescents call for directing more attention on determinants of adolescent health. The relationship between health and social capital has gained increased attention since the early 2000’s and research at review level confirms the importance of social capital for health outcomes, despite methodological heterogeneity. The aim of this study was to identify distinct profiles of family, school and peer social capital in a nationally representative sample of adolescents and to explore health outcomes in those profiles.

Method

Cross-sectional data from the Swedish Health Behaviour of School-aged Children 2013/14 was used for this study. The analytical sample consisted of 7,804 adolescents aged 11-, 13- and 15-years. Items representing sense of belonging and emotional support were assessed in three contexts; family, school and among peers. Latent profile analyses (LPA) were run to determine social capital profiles. Health outcomes included frequent health complaints and life satisfaction, while socioeconomic status and genders were included as predictors.

Results

The results show that five distinct profiles best represent the data for 11- and 15-year olds, while a four-profile model was optimal for 13-year olds. Some profiles were recurrent between age groups but unique profiles were also found. Health outcomes were significantly different between profiles depending on levels of social capital in the different contexts.

Conclusions

This study provides novel insight into how social capital co-occurs among adolescents within the contexts of family, school and peers and how this translates into differences in health outcomes. The national representativeness of the sample increases the implications of the results and contributes to meaningful insights that help explain the interactions of social capital in multiple contexts, complementing what is previously known about the relationship with adolescent health. © 2019 Ahlborg et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.

Place, publisher, year, edition, pages
San Francisco, CA: Public Library of Science, 2019
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:hh:diva-39476 (URN)10.1371/journal.pone.0212564 (DOI)000459330800040 ()30789947 (PubMedID)2-s2.0-85061940871 (Scopus ID)
Funder
Knowledge Foundation
Available from: 2019-05-26 Created: 2019-05-26 Last updated: 2019-08-01Bibliographically approved
Häggström Westberg, K., Wilhsson, M., Svedberg, P., Nygren, J. M., Morgan, A. & Nyholm, M. (2019). Optimism as a Candidate Health Asset: Exploring Its Links with Adolescent Quality of Life in Sweden. Child Development, 90(3), 970-984
Open this publication in new window or tab >>Optimism as a Candidate Health Asset: Exploring Its Links with Adolescent Quality of Life in Sweden
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2019 (English)In: Child Development, ISSN 0009-3920, E-ISSN 1467-8624, Vol. 90, no 3, p. 970-984Article in journal (Refereed) Published
Abstract [en]

This study aims to understand the role that optimism could play in the context of a health asset approach to promote adolescent health-related quality of life (HRQOL). Adolescents (n = 948), between 11 and 16 years old from a medium-sized rural town in Sweden, answered questionnaires measuring optimism, pessimism, and HRQOL. The findings indicate a significant decrease in optimism and a significant increase in pessimism between early and mid adolescence. The study has allowed us to present associational evidence of the links between optimism and HRQOL. This infers the potential of an optimistic orientation about the future to function as a health asset during adolescence and by implication may provide additional intervention tools in the planning of health promotion strategies. © 2017 The Authors

Place, publisher, year, edition, pages
Hoboken: Wiley-Blackwell Publishing Inc., 2019
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:hh:diva-35034 (URN)10.1111/cdev.12958 (DOI)28922470 (PubMedID)
Available from: 2017-09-20 Created: 2017-09-20 Last updated: 2019-05-09Bibliographically approved
Vinblad, E., Nygren, J. M., Karsson, C., Teleman, B., Svedberg, P. & Larsson, I. (2019). Parents’ expectations of a digital decision support tool for children with disabilities in pediatric rehabilitation – a qualitative study. In: 31st EACD Conference: . Paper presented at 31st EACD Conference, Paris, France, May 23-25, 2019.
Open this publication in new window or tab >>Parents’ expectations of a digital decision support tool for children with disabilities in pediatric rehabilitation – a qualitative study
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2019 (English)In: 31st EACD Conference, 2019Conference paper, Poster (with or without abstract) (Refereed)
Abstract [en]

Introduction: Children with disabilities usually have an extensive need for support from their parents in communication with healthcare professionals in pediatric rehabilitation. The aim of this study was to explore parents’ expectations of a digital communication and decision making tool for children with disabilities in pediatric rehabilitation.

Patients and methods: The study had a descriptive design with a qualitative content analysis approach. Interviews were conducted with 17 parents (aged 31-62 years, 13 mothers and 4 fathers) to children with intellectual disabilities, physical disabilities or autism spectrum disorders. Results: Three categories emerged reflecting parents’ expectation of how to increase participation in rehabilitation by using a digital communication and decision tool: 1) the children will become more confident with a higher self-esteem if they easily can express themselves and their inner thoughts 2) the children will respond more honestly without considering what their parents or healthcare professionals expect to hear 3) the children will become more independent if they have a possibility to be involved and understand decisions in their own rehabilitation.

Conclusion: The parents highlighted the importance of self-esteem as prerequisites to increase participation in rehabilitation for their children with disabilities, which they believed could be achieved by using a digital tool. A digital communication and decision making tool would strengthen the children’s voices in their own rehabilitation. This result constitutes therefore a basis in the development of a forthcoming digital communication and decision making tool, with the main objective to increase participation, for children with disabilities.

Keywords
Children, digital desicion support tool, parents, participation
National Category
Nursing
Identifiers
urn:nbn:se:hh:diva-39491 (URN)
Conference
31st EACD Conference, Paris, France, May 23-25, 2019
Available from: 2019-05-27 Created: 2019-05-27 Last updated: 2019-09-24
Svedberg, P., Nygren, J. M., Källstrand Eriksson, J. & Håman, L. (2019). Utvärdering - Välmående ger Resultat.
Open this publication in new window or tab >>Utvärdering - Välmående ger Resultat
2019 (Swedish)Report (Other (popular science, discussion, etc.))
Publisher
p. 35
National Category
Other Health Sciences
Identifiers
urn:nbn:se:hh:diva-39470 (URN)
Available from: 2019-05-24 Created: 2019-05-24 Last updated: 2019-09-09
Larsson, I., Nyman, C., Svedberg, P., Nygren, J. M. & Carlsson, I.-M. (2018). Children and young people’s participation in developing interventions in health and well-being: a scoping review. BMC Health Services Research, 18(507)
Open this publication in new window or tab >>Children and young people’s participation in developing interventions in health and well-being: a scoping review
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2018 (English)In: BMC Health Services Research, ISSN 1472-6963, E-ISSN 1472-6963, Vol. 18, no 507Article, review/survey (Refereed) Published
Abstract [en]

Background: Greater interest is being shown in participatory approaches, especially in research on interventions that concern children and young people'shealth and well-being. Although participatory approaches have user involvement in common, they differ in terms of the explicit guidance on how to actually involve and engage children and young people in health research. The aim of this scoping review was to systematically map recent research involving children and young people in the development of interventions targeting issues of health and well-being. Methods: An interpretative scoping literature review based on: a scientific literature search in (health and social science) databases, reference lists, a manual search in key journals and contact with existing networks was conducted. A total of 4458 references were identified through the literature search, of which 41 studies published between 2000 and 2017 were included in the review. The target population was children and young people under 25 years old. Level of participation was categorized according to Shier's Pathways to Participation Model. Results: The review showed that participatory approaches were most often used in the development of interventions in school settings and in community and healthcare settings and on issues concerning support in lifestyle or in managing illness or disease. The level of participation varied from children and young people taking part just as active informants, through stages of greater participation both in quantitative and qualitative terms, to children and youngpeople becoming an active agent involved as a co-researcher where the research process was shaped by views of a higher level of mutuality. Most of the studies were categorised at a medium level and only three studies were judged to involve the children and young people at the highest level. Conclusions: This scoping review showed that work remains in enabling children and young people to influence the development of interventions targeting health and well-being. In relation to level of sustainability in the interventions, it is relevant that goals, strategies and processes are formulated by those who can gain from the interventions. Participatory approaches aiming for a higher level of participation where children and young people work together with the researchers in partnerships are thus warranted. © 2018 The Author(s).

Place, publisher, year, edition, pages
London: BioMed Central, 2018
Keywords
Children, Intervention, Participatory approach, Scoping review, User involvement, Young people
National Category
Other Health Sciences
Identifiers
urn:nbn:se:hh:diva-38203 (URN)10.1186/s12913-018-3219-2 (DOI)000436841600004 ()29954392 (PubMedID)2-s2.0-85049212510 (Scopus ID)
Note

Funding Agency: Centre of Welfare, Health and Sports at Halmstad University

Available from: 2018-10-23 Created: 2018-10-23 Last updated: 2018-10-24Bibliographically approved
Carlsson, I.-M., Nygren, J. M. & Svedberg, P. (2018). Patient participation, a prequisite for care: A grounded theory study of healthcare professionals’ perceptions of what participation means in a paediatric care context. Nursing Open, 5(1), 45-52
Open this publication in new window or tab >>Patient participation, a prequisite for care: A grounded theory study of healthcare professionals’ perceptions of what participation means in a paediatric care context
2018 (English)In: Nursing Open, E-ISSN 2054-1058, Vol. 5, no 1, p. 45-52Article in journal (Refereed) Published
Abstract [en]

Aims

To explore healthcare professionals’ perceptions of what patient participation means in a paediatric care context.

Design

A qualitative explorative design with grounded theory.

Methods

Fifteen healthcare professionals who worked in paediatric care settings were either interviewed or asked open-ended questions in a survey, during December 2015–May 2016. Grounded theory was used as a method.

Results

The study results provide a theoretical conceptualization of what patient participation meant for healthcare professionals in paediatric care and how participation was enabled. The core category “participation a prerequisite for care” emerged as the main finding explaining the concept as ethical, practical and integrated in the care givers way of working. However, the concept was implicit in the organization. Four additional categories illustrated the healthcare professionals’ different strategies used to enhance patient participation; “meeting each child where the child is,” “building a relationship with the child,” “showing respect for each individual child” and “making the most of the moment.” © 2017 The Authors. Nursing Open published by John Wiley & Sons Ltd

Place, publisher, year, edition, pages
Chichester: Wiley-Blackwell Publishing Inc., 2018
Keywords
Children, grounded theory, healthcare professionals, patient participation, paediatric care
National Category
Nursing
Identifiers
urn:nbn:se:hh:diva-35150 (URN)10.1002/nop2.106 (DOI)
Projects
Hälsa och hållbar uppväxt
Note

Funding: This study was supported with partial funding from the Research Environment the Centre of Welfare, Health and Sports at Halmstad University.

Available from: 2017-10-05 Created: 2017-10-05 Last updated: 2018-01-19Bibliographically approved
Svedberg, P. & Nygren, J. M. (2018). Patientdelaktighet och medverkan hos barn och unga (1ed.). In: Ann Catrine Eldh (Ed.), Delaktighet och patientmedverkan: (pp. 59-104). Lund: Studentlitteratur AB
Open this publication in new window or tab >>Patientdelaktighet och medverkan hos barn och unga
2018 (Swedish)In: Delaktighet och patientmedverkan / [ed] Ann Catrine Eldh, Lund: Studentlitteratur AB, 2018, 1, p. 59-104Chapter in book (Other academic)
Place, publisher, year, edition, pages
Lund: Studentlitteratur AB, 2018 Edition: 1
Keywords
Delaktighet, Patientmedverkan
National Category
Health Care Service and Management, Health Policy and Services and Health Economy Nursing
Identifiers
urn:nbn:se:hh:diva-37007 (URN)978-91-44-11329-6 (ISBN)
Available from: 2018-06-12 Created: 2018-06-12 Last updated: 2018-06-13Bibliographically approved
Schön, U.-k., Grim, K., Wallin, L., Rosenberg, D. & Svedberg, P. (2018). Psychiatric service staff perceptions of implementing a shared decision-making tool: a process evaluation study. International Journal of Qualitative Studies on Health and Well-being, 13(1), Article ID 1421352.
Open this publication in new window or tab >>Psychiatric service staff perceptions of implementing a shared decision-making tool: a process evaluation study
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2018 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 13, no 1, article id 1421352Article in journal (Refereed) Published
Abstract [en]

Purpose: Shared decision making, SDM, in psychiatric services, supports users to experience a greater sense of involvement in treatment, self-efficacy, autonomy and reduced coercion. Decision tools adapted to the needs of users have the potential to support SDM and restructure how users and staff work together to arrive at shared decisions.

The aim of this study was to describe and analyse the implementation process of an SDM intervention for users of psychiatric services in Sweden. 

Method: The implementation was studied through a process evaluation utilizing both quantitative and qualitative methods. In designing the process evaluation for the intervention, three evaluation components were emphasized: contextual factors, implementation issues and mechanisms of impact.

Results: The study addresses critical implementation issues related to decision-making authority, the perceived decision-making ability of users and the readiness of the service to increase influence and participation. It also emphasizes the importance of facilitation, as well as suggesting contextual adaptations that may be relevant for the local organizations.

Conclusion: The results indicate that staff perceived the decision support tool as user-friendly and useful in supporting participation in decision-making, and suggest that such concrete supports to participation can be a factor in implementation if adequate attention is paid to organizational contexts and structures. © 2018 The Author(s).

Place, publisher, year, edition, pages
Abingdon: Taylor & Francis, 2018
Keywords
Shared decision making, psychiatric services, decision support tool, implementation, process evaluation
National Category
Health Sciences
Identifiers
urn:nbn:se:hh:diva-37006 (URN)10.1080/17482631.2017.1421352 (DOI)000424831900001 ()29405889 (PubMedID)2-s2.0-85045243442 (Scopus ID)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare
Available from: 2018-06-12 Created: 2018-06-12 Last updated: 2018-06-13Bibliographically approved
Projects
Peer support intervention for improved mental health in children [2012-27_Formas]; Halmstad University; Publications
Einberg, E.-L., Nygren, J., Svedberg, P. & Enskär, K. (2016). ‘Through my eyes’: health-promoting factors described by photographs taken by children with experience of cancer treatment. Child Care Health and Development, 42(1), 76-86
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0003-4438-6673

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